What are the financial costs of Polycystic Kidney Disease (PKD)?I'm trying to find a financial breakdown of medical costs for PKD. Also, does anyone know how much it costs to insure someone with PKD?
Posted by JAMES & MARY
I do not think any ins. company would insure you with PKD, as in self insured. Your best bet would get a job that offers group health ins. The larger the company, the better chances you have with getting the ins, you may have a year waiting period, but it would be worth it. In the first 3 stages, it is really easy, just keep you blood pressure down, do not become a diabetic, and keep away from any drinks and food with artificial sweetener it it. NO DIET DRINKS! I am in Stage 4 (severe) PKD. I have to see my doctor every 3 months, have blood tests every three months. Have a C/S once a year. You will also have to be tested for aneurysms in your brain from get go, because from your kidney's not filtering all the poisons out of you blood, this can cause aneurysms, I have one in my cavernous sinus behind my left eye, so you will need an MRA nor (MRI) every 3-5 years. My working kidney function is at 20 %, once I reach 15 % the next step is dialysis, that is where the MONEY starts adding up fast, but first you have to get a different Doctor to do a surgery to put a stent in your arm to hook up to the machine, then after that heals you go 3 times a week for dialysis. I do not know your age or what stage you are in, but it can take 15 to 20 years to start having symptoms. Also you can try disability, because you do have a disease that will never improve or never have a cure for, it only gets worse, and that is what disability was meant to be for. Good Luck, and yes it is very scary, Mary
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