23 weeks pregnant and last ultrasound showed that I had...?So two weeks ago, I had an ultrasound. I didn't see the doctor afterwards, as he was so busy, so I made an appointment to come back today. Today, as he was going over my paperwork, he told me that it looked like I had polycystic kidney disease.
Has anyone else been diagnosed with this??? If so, how did it turn out and were you able to carry your baby full term?
I need help, because I can only find information about dialysis patients who have been able to be successful in getting pregnant, not about anyone who had been diagnosed with it during their pregnancy. If anyone knows ANYTHING about this, please, I'm desperate to know if my baby and I will be ok....
Yeah my doctor is too much of an optimist. I also have cervical cancer, and he is quite flouncy about that as well.
Posted by Kat
You have a terrible doctor if he didn't talk to you about the effects on your pregnancy. I would talk to your doctor, but if they haven't warned you about ramifications, take it as a good thing and assume everything will be ok during the pregnancy.
Posted by Gabi
well then you have a suckish doctor is he doesnt tell you the risks of haveing the disease and being pregnant..go somewhere elsee
Posted by Sasha's Mommy
Don't know if any of this will be helpful, but here's some information that I found:
Having kidney disease can make pregnancy more complicated. The more severe your kidney disease, the greater the risk of having a difficult pregnancy. By 'risks', we mean risk to the baby and risk to the mother.
For most people with mild kidney disease, the risks may still be pretty low, even though they are higher than for someone with normal kidneys, but if no one has discussed this with you, you should ask your doctor. For some people, usually those with quite significant kidney disease, or with other health problems, the risks may occasionally be very high.
The worse your kidney function, the higher your blood pressure, and the more protein in your urine, the higher the risk.
The risks include the fact that pre-eclampsia is more likely (see next section), the risk that your kidneys may suffer further damage during pregnancy, and the risk to the baby.
What is pre-eclampsia?
Pre-eclampsia is a combination of high blood pressure, and a leak of protein from the kidneys into the urine. It only happens in pregnancy. Most cases are mild, but some are serious and require early delivery of the baby. Babies may be small as well as premature. High blood pressure is more common in people with kidney disease, and this makes pre-eclampsia more likely.
Does having kidney disease harm the baby?
Having kidney disease itself does not harm the baby. However a few kidney diseases are inherited and may be passed onto a child. The table below lists the commoner of these; if you are not sure, ask your doctor if your kidney disease is inherited.
Kidney Disease
Risk of Inheritance
Autosomal Dominant Polycystic Kidney Disease (Polycystic kidneys) 1/2 Risk
Alport's Syndrome Variable
Reflux Nephropathy Unknown
Having kidney disease might result in slower growth of a baby but this rarely causes any problems. More important is the fact that some babies will be delivered earlier than at the normal 40 weeks; this may occur naturally, or might be "induced" in order to protect the mother from pre-eclampsia.
The earlier a baby is born, the more likely it is to have problems with breathing, feeding and growth; babies who are born early often need special care in hospital for a while. If a baby is born before 22 weeks the outlook for survival is very bleak. From 22 weeks to 28 weeks the chances for survival improve with each extra week in the womb but still this prematurity carries a risk of complications. From 30 weeks on the overall outlook for the baby is good but the baby may still need a special care baby unit.
Does being pregnant harm the kidneys?
A kidney that is already diseased might suffer some further damage during pregnancy. This is more likely if the kidney disease is severe at the start. People with kidney failure who expect to need dialysis in the future may find that pregnancy hastens their progression to dialysis. Rarely it is necessary to start dialysis during pregnancy.
The risk of losing kidney function during pregnancy increases with increasing severity of kidney disease (lower GFR, higher creatinine) before pregnancy. The risk is probably low if your creatinine was below about 140 micromols/l; and moderate if it is 140-170. However there is a lot of variation. Having a lot of proteinuria and difficult blood pressure probably increase the risk.
Wishing the best to you and your baby!
Orignal From: 23 weeks pregnant and last ultrasound showed that I had...?
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