My LYMPH NODES are extremely palpable (for years) i have lost TOO MUCH WEIGHT, what is wrong?Hello....if anyone would like to try to DIAGNOSE ME, I'd be SO GRATEFUL AT THIS POINT!
..... i'm 30 year old female, with a 10 year old son and had a thoracic fore gut tumor(benign) removed from my chest @ 15, a good portion of which was attached to my lungs, aorta,esophagus, Trachea.
To Date- no known complications or regrowth.
109 lbs
5'3"
hypothyroid, on synthroid
Had IUD recently placed in cervix
amphetamine salts,celexa, lorazapam for depression/fatigue and ADD
MY SYMPTOMS:
CURRANTLY AND THIS PAST YEAR: Generalized Swollen lymph glands(some firm and hard in groin area. Also where my hairline is in the back of my neck behind my ear i guess, and a few large ones up the side of my neck aligned with my shoulder), Re currant low Grade Fever(no higher than 101 w/out infection),Itchy Skin, Memory Loss,Hair loss, Acne,Bowel Changes,On and Off fatigue, mucus in my stool(for one year at least.More mucus than actual stool on average! SORRY TO BE SO GRAPHIC! Lower Back Pain, DULL ACHING PAIN on the inside of my knees,stiff neck,ankle pain after being on my feet for more than an hour.Also extremely dry; mouth,skin,hair,eyes,&nostrils, dizziness upon standing, sweats,wounds heal slowly, weird painless swelling above my butt where my dimples are(no dr has been able to guess why/what this swelling might be),diarrhea and constipation, tenderness above my belly button, hyper pigmentation on abdomen, arms and feet, anxiety, blood pressure has steadily increased throughout all of my many dr's visits this past yr.
ADDED RECENT SYMPTOMS:Kidney pain, visible blood in urine: for 2 months now! it was bright red and then less visible for awhile and now dark brown like tea and extremely strong smelling, hardening and bloating of abdomen, extreme fatigue, productive cough, chest pain, neck pain,easily exhausted, unexplainable bruises, muscle spasms and bulging type pain JUST under my rib on both sides separately, weird stabbing pain on my left groin area near my larger lymph glands that makes my tendon look swollen, thrush, protein in urine, HI albumin in urine, repetitive rbc in urine, BUT NO INFECTION!! (multiple negative cultures), kidney stone shows on CT in an area that is expected to be asymptomatic and may not even pass. BUT I DO HAVE difficulty urinating and cramping JUST PRESCRIBED CIPRO FOR A SECOND TREATMENT. (not sure exactly why since culture is consistantly negative)
Many tests HAVE BEEN DONE: .....All Basics(CB C's, liver, etc panels) + Lyme Disease,Hep(B,C etc), ANA,Sed Rate,R.F.,AIDS, Celiac Disease,Fecal Bacterial+Viral cultures,Lupus,Syphilis, Gonorrhea, Chlamydiae,Anemia, scleroderma, h. pylori, bladder cancer,
P.C.P. says: hematologist &will do allergy & routine testing upon insurance ok
E.N.T(ear,Nose&throat) says: inflammation or irritation down deep in my throat(but i smoke so...)
GASTROENTROLOGIST says: gastritis, hemorrhoids,IBS, lymphoid aggragates in non lymph areas
UROLOGIST says: extreme gross & microscopic unexplained hematuria, referral to hematologist(concerned about enlarged lymph's in groin and unexplained hematuria---------says kidney stone most likely not causing this amount of rbc,did FISH URINE TEST...NO CALL SO I'M GUESSING ALL CLEAR ON RESULTS)
HEMATOLOGIST says: i'm thin so nodes are more palpable s we should wait. does not believe biopsy is neccessary at this point
RHUEHEMATOLOGIST says: no signs autoimmune, non arthritic/ lupus like disease
GYNOGYNECOLOGIST says: no infection, no discharge see urologist...
DERMOTOLOGIST says: see rhuemotologist! lol, biopsied pigmented marks(inconclusive-possibe allergic reaction)
i am waiting on results of a chest CT from HEMATOLOGIST because he heard alot in my lungs and another aids test(that'll be 4 tests in the last yr(all negative)
I'M SURE THERE IS MORE INFO I"M NOT OFFERRING
but i can't remember everything! lol any EDUCATED ADVICE would be appreciated
THANK YOU!!!! i feel so helpless when i am sooo tired or weak..... i just want a solution!
PLEASE HELP!
Posted by tod j
inflamed kidneys and fatigue caused by diabetes?
avoid sugar, get checked.
eat small meals at regular times. sweats are often low blood sugar.
Posted by PoisonTrees
See what the CT results are. If you get no answers there, I would go to a different hematologist and insist on a biopsy. If you can't get answers switch to a hospital that specializes in diagnostics.
Posted by Kiwi Marie
Get retested through IgeneX lab or Stony Brook for lyme and co-infections- Skip the regular doc labs. They miss it. See for yourself by getting the report and asking what "bands" they tested for.
So many people tell me they are neg but only to find the test was not complete. You need a western blot at minimum. Most general labs do ELISA and IF positive may move to the next step of western blot but then still do only do some not all testing "bands".
Orignal From: Kidney Disease: My LYMPH NODES are extremely palpable (for years) i have lost TOO MUCH WEIGHT, what is wrong?
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