Living and Caring For Someone With End Stage Liver Disease?I don't even know where to start... But I need someone to talk to...
My grandmother has end stage liver disease... I known for awhile she had liver problems but she has kept them from us or just not told, She always taken care of us.
Lately she been in and outta the hospital these past few months, with some really good scares in there, I guess i just been playing blind to the fact of all her medical problems, because there a whole whack of them, but as the time goes by, I can no longer play blind to the fact of what is inevitable.
She is the End Stage Liver Disease, I'm sure it just the beginning ( i think) i Google it and read some of the article online, the most things that come up are about Kidney Failure and it being down hill from there and she not there at that stage,
I don't wanna dance around the question, but what kinda of life expectancy are we looking at, without a transplant, and I pretty sure we are a far ways from evening being fit to be a candidate, and even if she was fit, the wait cant be unbelievable long, ( I know this from another family member waiting for a liver transplant and she been waiting forever)
There been so many hospital visit in the past months, and there so many other things wrong with her, I just don't know... and I haven't really asked the doctor too much yet... I want know what is coming my way, I am crazy to be thinking the worst is starting... ( As much as I wish I was I don't think I am )
I'm in the role switching spot, where I am know the caregiver, A caregiver to a women has done so much for e in my life... she been my rock... I don't expect to get the answer im looking for here... I'm not even sure of all the detail ... this Liver disease ( and actually taking a look at it ) is all very new to me .
The Basis of all this is... I dont wanna play blind to the fact.... waste the time do have with her, thinking ahh she be ok.... because visit and visit seem to get worse... maybe im rambling for nothing.... but i hope someone hears me ....
~Feeling Scared and Alone ~
Posted by Paramedic Girl
Kiddo, first and foremost you need to be a part of her medial care which means asking questions. Make a list of the ones you already have for her doctor. Knowledge is key.
As well, you can look at getting some outside help... a nurse to come in a couple of times per week to look in on her and help you with concerns you may have as well. You will also need a break now and then.
I would also talk to a counselor. Emotionally this is going to take a toll on you. As it would anyone in your situation.
Have her friends over for tea sometime. Visits are important and will make everyone feel good and up lift spirits.
Keep your chin up.
Posted by dude I
This question is hard to answer for more than one reason. What is the disease that is causing "End Stage" and has it involved other organs.
The best suggestion would be talk with her Physician as he would be able to tell you her prognosis as he knows her total history.
I am sorry to hear of the problem for your grandmother. Keep the Faith.
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