4/18/11

Kidney Disease: Fun activities and things for a person with an autoimmune disease to do?


Fun activities and things for a person with an autoimmune disease to do?I have lupus SLE and kidney disease, and since I am very very sensitive to the light the summer is sad and depressing for me. I am getting tired of staying in the house, I also want to do things that can be done alone to since all of my friends work and I don't. I also am looking for some ideas about some activities I can do at night to which would be great. I also need activities that I can do with my friends when they are available that will be fun but do not require me to be out side or over do it physically. Please hep I am feeling like I am been cut off from the world because I have a disease that limits me physically

Posted by luvsherinboots
Dear Kenbfos,
I feel for you. I have discoid lupus. I can feel my skin burn in sunlight. I wear prescription sunblock even at night.
I go to the beach; when it rains, I go to the aquarium, and the Bronx Zoo, I fly my Radio Control Helicopter under the Pkwy.
Go bowling, Museums, movies, casinos, dinner.... travel to other cities and repeat this formula w/ gps (try washington DC) use the subway, when above ground walk on the side of the street with shadows

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