Does anyone have MPGN type 2(kidney disease) or aka Dense Deposit Disease?the full name is Membranoproliferative glomerulonephritis type II ...I have had this disease for about 3 1/2 years...and i really need someone to talk to who is going through what i am...does anyone know of or have this disease??do you feel like talking with someone --who well really just needs a friend or someone to talk to about this disease and other things...? besides a doctor...
I also was diagnosed with IC on wednesday through a potassium sensitivity test and im a little worried about it because im going for a cystoscopy..next week.....if something shows up they want to do a bladder biopsy .....then in a month i am having a kidney biopsy done to check the status of my disease...im just nervous because of all these procedures...can someone help me or talk to me??has anyone gone through this or something similar?
i also notice i have been acting different and trying to rush into things and really overcompensating for being sick all the time and want to push past the symptoms
and medications and restrictions and find my way back to my life ..and mostly me...i feel controlled by it ..i just want to know if this is normal or if anyone else has been or is going through this??and if you have some helpful advice..??but please no mean answers...thanks to everyone for their help!!
Posted by yumsorbet
Try looking online for support groups with people with your condition
Posted by CindyLou
Ask your nephrologist for info on groups!
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