Autosomal Recessive Polycystic Kidney Disease?My 1 month old daughter has it. They thought she had polycystic kidney disease alone inherited from me and her kidneys were enlarged. She had surgery last week and got one kidney removed which is when they found that shes more likely to have autosomal recessive polycystic kidney disease. can anyone tell me what this is and whats likely to happen to my baby??
Posted by nancy
sorry i dont know but i pray for ur daughter...
Posted by formerly_bob
A diagnosis like this must be quite a shock. This disease usually reduces life expectancy, but the nature and severity of effects from this disease vary. The docs will be able to give you an assessment of her prognosis once they perform a few more tests.
The primary risk from this disease is eventual kidney failure, which could occur in adolescence or early adulthood. Sometimes there are also problems with the liver. Most likely, even under the worst-case scenario, she will probably have a mostly normal childhood at least through her grade school years. Once kidney problems progress, dialysis will probably be needed.
A kidney transplant could possibly be an option once the disease advances, and after a transplant, if it is successful, people lead normal lives.
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Angel Jody Michael ---Autosomal recessive polycystic kidney disease (ARPKD)
This video was done by Now I Lay Me Down To Sleep. To read our full story visit www.carlajoe.wordpress.com. Our precious son Jody Michael lived for one precious hour before he was received in Heaven. He passed due to complications caused by Autosomal recessive polycystic kidney disease (ARPKD)
Orignal From: Autosomal Recessive Polycystic Kidney Disease?
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