Adult children with cerebral palsy having renal disease complications...?My 23 year old son with cerebral palsy and severe developmental delays was recently diagnosed with stage III renal disease of both kidneys, according to the lab work and all their numbers. However, he shows no outward symptoms and had I not known there was anything wrong with his kidneys, I wouldn't be extremely concerned. The nephrologist told me that in chronic kidney disease, there are no symptoms when it first starts, but Monday, she called me to tell me that he is in acute renal disease with only 16% functioning, which I find very difficult to believe as he seems fine -- no swelling, no loss of appetite, no lethargy, normal muscle control, no whining, no paleness, etc. so we repeated the blood work yesterday. I pray that the results are much, much improved!
Does anyone know of this happening with people with CP and developmental delay?
Posted by upards
My husband is a type 2 diabetic. We were told 2 years ago that his numbers were close to those of your sons. With diet, meds and luck he was able to keep his numbers there. Three weeks ago he had what his MD. thought was an upper respiratory infection. After 2 days of antibiotics he was getting worse and his B/P was high. To make a long story short, he had none of the symptoms that you listed and that we were looking for. But his kidneys were failing. And this not a week after his neph told him that they were mysteriously improving! He is now on dialysis and still has no symptoms. His output is like it always was. And he is having no problems with the dialysis that we were told to look for.
I have since learned that it is not the amount of urine but the quality of urine that is put out. So my point is that the symptoms are not always there. The numbers from the blood tests are what shows how well the kidney's are functioning. We are doing dialysis in center right now but will begin to train to do what they call PD at home in a week.
I have been doing research and looking for support groups online. I would be happy to pass these on to you. There are a couple with medical experts as well as a caregiver site that would help you as well. Please email me if you are interested. I hope this helps.
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