4/17/11

How fast does CKD usually progress? (Kidney Disease)?


How fast does CKD usually progress? (Kidney Disease)?My wife is 23 and just told she has stage 3 CKD (chronic kidney disease). How fast does this stuff progress? Are we looking at dialasis next year? Two years from now? Do we need to get a second and third opinion from different doctors or do the BUN, creatinin, and a GFR in the 30's pretty much sum it up? I know some doc's are just out to get money and our doctor fits that bill in my opinion, but from the research I've been doing this diagnosis seems pretty cut and dry. Anyone had any experience with this young of a person and CKD? I'm gussing pregnancy is pretty difficult/impossible?

By the way, the doc who gave us this diagnosis gave us a packet on CKD, a packet on what to eat, and told her to "excercise and eat this diet" and kicked her out the door in 30 minutes. We had 3 previous visits with this guy and he was always very brief and cold. Should we see someone else and is there any chance that his diagnosis is wrong?

Also she had a sonogram and MRI... both were clear.

Posted by cmjack7910
Hi, I'm 36 years old (female) and have had chronic kidney disease since I was 15. When I was diagnosed I was very sick (high temp. & extremely high blood pressure). They tried to fight it with Prednisone but said I would end up on dialysis anyway. So at 17 I did start dialysis. I had dialysis for 3 years until my transplant when I was 20.
Anyway, since then I've had 2 boys (age 9 & 12 now).
Now I'll share my opinion of your situation. I've always been told they wouldn't resort to dialysis until my GFR was less than 15. How's her creatnine? Mine averages about 2.2 (not ideal but it works for me).
I think your wife has awhile before dialysis. Does she feel OK? How is her blood pressure? I think you should see a nephrologist
and just take it as it comes. God Bless you both. Please feel free to contact me anytime with questions or concerns. :o)

Posted by okarol
My daughter is 21 and her kidneys failed 3 years ago, so she began dialysis, and has now had a transplant. It varies in the length of time for the kidneys to completely give out. The 24 hour urine cleance test is the best measure of kidney function, has she had that test? Many women go on to have healthy pregnancies, but she needs to stay as healthy as possible. There are lots of kidney and dialysis patients that can help answer this question at http://www.ihatedialysis.com - go to the forum and post a question - it's a really great group of people with experience and knowledge to share! You can also read our story at http://www.latimes.com/news/local/la-me-kidney30dec30,0,3538873.story?coll=la-headlines-california - good luck!

Know better? Leave your own answer in the comments! Learn basic information on kidney disease from the experts at Kidney Disease Info Blog.


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