I have polycystic kidney disease, when will i need a transplant by if i was diagnosed at 10 and now am 18?Hi i am a 18 year old female with polycystic kidney disease ! i was wondering if anyone knew about this disease and what could happen to someone with it? would i need a transplant in the near future if i was diagnosed at 10 ?
Posted by Jackie B
I worked in a dialysis clinic for 11 years. Cysts form in the kidneys for years until so much damage has been done and kidney function goes down to less than 10% Have you been followed by a nephrologist on a regular basis? Once it looks like kidney function is going down, sometimes you doctor will proceed with transplant. If you are unable to have a transplant soon enough, you will probably go on dialysis until a kidney becomes available. Just want to add that PKD is passed within families. I had a patient whose sons and some of the grandchildren have gotten it. This might be something you need to factor in when it comes to having children.
Posted by Nicole
I'm 17 and was diagnosed when I was nine.
Live about your life like you usually would, but there are a few things you need to watch out for.
Avoid things that involve jumping around, for example, I used to do trampoline gymnastics and horse back riding, I had to stop because the up and down motions make the cysts grow.
Salty foods. avoid those.
And just remember to keep a good diet, be healthy. And if you were given any medication from your doctor, then TAKE IT. I had blood pressure problems too so they gave me a pill to take, and I really don't like taking pills, so i didn't take it. But apparently I just found out that if I DO take the pill it ll elongate the life of my kidneys. pretty much I'm keeping myself alive longer if i take it.
Don't worry about transplants unless your kidneys are really bad and are full of cysts. Just keep it monitored. ex: i go to the hospital every 6 months for ultrasounds on my kidneys to check the cysts, and see if they grew/or there are any new ones.
hope this helped :) peace and love!!
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Kidney Transplant for Polycystic Kidney Disease
Friends since childhood but separated by years and geography, Alan Landros and Blyden Loutensock found each other again in a time of need. And when it came time for Loutensock to make a choice to help his old friend - Landros needed a life-saving transplant after polycystic kidney disease had nearly destroyed his organs - he didn't hesitate to donate one of his own kidneys. "We get one chance to live our lives and do good things," says Loutensock. "It will literally be a chance to give Alan his life back, and that's why I'm doing it." The two men had met in grade school in Burbank, California. They remained friends through high school but afterward went their separate ways. Loutensock was living in Utah with his wife and children when word came to him that Landros was ill. He immediately decided he would help if he could, and when testing determined he was a good match he spent two years losing 40 pounds and undergoing rigorous physical training to prepare for the surgery. Landros was overwhelmed to learn that his old friend, whom he had not seen in many years, had come forward to help him. "It's hard to put into words someone wanting to do this much for you," he says. "Saying thank you' seems so inadequate." Forty-six years after they first men, Landros and Loutensock were together at Ronald Reagan UCLA Medical Center, where Dr. Albin Gritsch, surgical director of the UCLA Kidney Transplant Program, would oversee the operation. First, Loutensock underwent laparoscopic ...
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